Musings on Fibromyalgia

I’m just sitting here thinking about fibromyalgia. This is turning into a bad day for me. I’m in pain and feeling foggy. I forgot to take my morning dose of Flexeril. So I’m paying for it now.

Fibromyalgia is odd in that a good deal of physicians don’t believe it exists. Others use it as a dump diagnosis, as in we’re tired of dealing with so you must have it type of diagnosis. The rest treat it…differently.

Out of the physicians who treat Fibromyalgia there are different camps. Some think it is a symptom of depression. Others treat it like a kind of arthritis. Some think it is neurological. And there is some evidence that it might be part of a retrovirus. There are new studies going on now so hopefully we’ll know more soon.

The funny thing is how people start…it starts with a sharp pain that you can’t ignore, the sudden tiredness and memory problems. Patients almost always have other problems that seem to be under control. The problems seems to start after an accident or illness.

This brings me to what I’m getting at. Is that really when it starts? What if it happens earlier and we just don’t notice or dismiss it? What if this isn’t a sudden thing as it seems but rather reaching an unavoidable peak?

I assumed a lot of things about myself. Even when I was in great shape in my twenties walking hurt. Exercise was exhausting and extremely painful. As a child I would sit out of gym class because it was too painful to run. I assumed that this was normal for everyone. Sharp stabbing pains in my arms when I write with a pen or pencil, thighs not being able to move after block of walking, fingers aching after kneading dough, crazy fog about the brain for no reason other, falling asleep in the middle of the day, I thought that was normal for everyone.

So when I reached the point of realizing that no one I know finds this normal, I felt awful. Pain and exhaustion. It sucked.

But really is that when it started?

Things that Happened this Week

So I’ve been slow to post. For the first time in a long time I have a bunch of unfinished drafts waiting for me to finish them.

This week has been hell. Aia woke up Monday morning with a fever and her entire face swollen. Naturally I panicked, called the dentist (who didn’t answer the phone) and the doctor. The doctor thought it was the mumps (back up, I gave her pink children’s Tylenol before all this. Not stupid.).

Crap I thought…mumps aren’t too bad…we totally have two weeks before Disney World, so she could still go and maybe I could work from home.

But then she couldn’t move and the doctor had me feel around her face. It’s not mumps, they told me to head to the nearest children’s hospital cause it could be meningitis. (For those that wonder there’s a children’s hospital still at St. Jospehs).

So after wandering around construction at about 80mph downtown while on the phone with work (they were having a mild panick attach because the realized (again) that they can’t do the website without me and they need training) we found St. Jo’s. It took another half hour to find parking. I finally found a $3.00 a day emergency lot.

We get her inside and through triage. I spent most of the time explaining what all the equipment was for (thank you birthing and kidney stones) so that she’d stop being scared of it all. The doctor comes in (no random nurse to do things, nice!) and declares it multiple abcess teeth that need to be taken care of today. They give her children’s Motrin and a perscription for pencillian and off we go.

Have I mentioned the dentist still hasn’t answered the phone at this point?

I started out of the lot to find out they only take cash or check, no credit (Who does that?) But the gate guard just lets us go. So we drive to Golden, which I70 midday traffic is pretty good, just so you know.

So I show up at the dentist office, explain the details and that they should answer their phone or at least check messages. They take Aia right away and take pictures. They decide to pull the teeth the next day. And we are sent home to eat, do mold, and keep the fever down.

Cue about 8:30am on Tuesday with me driving pell-mell late to the appointment because I took I-119 cause H56 was closed the day before and on Tuesday they close I-119 and opened H56 (Signs,people, SIGNS) instead so I had to go around the mesa to get to Golden. Good thing I lived in that neighborhood as a child and knew how to get around it. We get there late, but they still take her right away (love that dentist!).

So the shots begin (which go much better than the last time). However they can’t get her numb and have to stop. They send me with xrays down the street to the pediadontist. They take use right away, pull the teeth, give Aia a fudgecycle, and tell me that she has to come back for spaces (think braces that push instead of pull) and that she has to more teeth on the verge of bad but they think they can save them next week.

So after I feint from brokeness all is well. I’m not a fan of broke (especially when I finally had replenished savings a bit, all gone now.) But at least Aia’s okay. Now I just need to figure out how to pay for braces right now. Crap.

My Ears Hurt

This stupid sinus infection is kicking my ass. All I want is to have something hot to drink. Not coffee, I want tea.

I’m not supposed to have normal tea (kidney stones)…but maybe I can find an herbal blend that mimics my beloved black tea. Monday I spoiled myself at Seven Cups with a large pot of Rose Black. Bad Michelle.

Today I over sugared. I get Starbucks because I like it. I quit the Chai (sniff, feel my pain) and switched to white mochas…but it’s becoming very migrainly clear that this is killing me. The sugars (not good carbs) are coming from fruit, rice and beans right now (mostly rice and beans in the form of Mochi). I do okay on that in moderation…but the Starbucks is sending me over the edge. Must quit.

So herbal tea recommendations everyone. The other Jeff at work rescued my tea cup from behind the desk. Proper Jeff doesn’t drink tea, just coffee, other Jeff drinks neither. So no recommendations there.

This weekend unlike most weekends…

I cam down with the flu this weekend…I still feel achy and flemmy but better.

Ironman was incredibly cool. The summer movie selection will have a lot to live up to right away. Really all comic books should be made this way. We were talking about it…it seems that Marvel is running out of old superheros to do movies for. They’re trying to fix hulk…but other than that? What new ones should they go with?